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Northern California Community
Blood Bank employee Katie Kime hands a swab to a potential
bone marrow donor. Tyson Ritter/The Eureka
Reporter |
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Share life;
become a marrow donor |
by
Carol Harrison, 12/15/2007 |
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It’s “Saving
Private Ryan,” Eureka-style, and no one has to go to war to save the
sole remaining son of a Eureka woman’s sister.
Jan Pierre’s
sister lost two sons in six years — one to murder in 2001, the other
to a massive coronary at age 47. The remaining son and Pierre’s
nephew, 43-year-old Vaughn Thomas, suffers from multiple myeloma,
which is cancer of the blood plasma.
“It’s not curable, but
it is treatable,” Pierre said in a phone interview. “We are
desperately trying to get him a bone marrow match.”
For the
past 10 years, Project Share Life has been the Rotary Club of
Southwest Eureka’s effort to help the Vaughn Thomases of the world.
It conducts an annual drive to enroll individuals in the National
Marrow Donor Program Registry. According to the NMDP, more than
6,000 men, women and children suffer from leukemia, lymphoma and
other life-threatening diseases and can be treated by a bone marrow
or cord blood transplant.
“What in the world could be better
than saving a life?” Nyle Henderson asked earlier this month after
watching 125 Humboldt State University students line up to have
their mouths swabbed and join the registry of 10 million.
The
students were part of the Rotary Club’s December drive to expand the
registry. Henderson said Rotary pays the tissue typing costs of
approximately $65 for every person who signs on.
Project
Share Life spread to Rotary clubs throughout Northern and Central
California. All told, Henderson’s Rotary brainchild added 20,000
people to a registry that has grown by 1,000 percent since
Henderson’s son, Steven, lost his bout with multiple myeloma in the
early 1990s.
Back then, Henderson said, there was 1-in-5
chance they’d find a match for Steven.
“We wondered what in
the world could be done to make it better,” Henderson recalled.
“Imagine how devastating it is to family members with a loved one
facing a terminal situation and not being able to find a match. We
got a shot at it, but it made me aware how urgent it
is.”
Now, Henderson said, those odds are 4 out of
5.
“That means you line five people up and one of those isn’t
going to get a shot at life. That’s still unacceptable,” Henderson
said. “There are things in life we have to do and things we ought to
do. This is something everyone between 18 and 60 ought to do. It’s a
mouth swab that takes 15 minutes one time in your life.”
“The
testing can be pretty painless,” said Lisa Powers, donor care
specialist for the Northern California Community Blood Bank, which
offers the swab and registers donors year-round.
Powers said
the blood bank gets two or three donors a month, a few more on
occasional months.
“I try to warn people ahead of time to
take a moment to decide if this is something you really want to do,”
she said. “If you were to become a match, it could be
painful.”
Even so, Powers said, the threat of pain (see
sidebar) doesn’t scare off many.
“A lot of people want to be
able to help someone and most figure what’s a little bit of pain
compared to saving someone?”
The worst thing, Powers said, is
to sign on for the easy part and then back out. It’s tough on the
family and delays life-saving treatment.
Powers has been on
the registry for 10 years and never matched.
“But I recently
tested someone who had a possible match for the third time,” she
said.
Those who come up as a match return to Powers for
additional testing and blood work, which is then sent to the
national repository in Minnesota and to the physician of the
patient.
“Vaughn has a very difficult match,” Pierre said.
“He’s a very rare person, quite rare in this case. He’s had to go on
a medication that basically keeps the wolf away from the door. It
will keep him from getting worse and buy him some time to find a
really, really suitable donor.”
“A lot of people feel it
won’t affect them, that it will never impact them,” Henderson said.
“But there are a lot of Jans, Nyles, Vaughns and Stevens out there.
I’ve been there two, three times when the donors meet their matches.
That will make a believer out of you. If you don’t puddle up,
there’s something wrong with you.”
A Christmas match for
Vaughn is No. 1 on the Pierre Christmas list this year.
“You
have no idea,” Pierre said.
Those wishing to add their names
to the bone marrow registry can do so at any Bloodmobile or at the
blood bank at 2524 Harrison Ave. in Eureka.
“There’s someone
out there that is the person they need,” Henderson said. “We just
haven’t done a good enough job of putting together a registry where
there’s a 98 or 99 percent chance of getting a
match.”
Myths and
Facts About Bone Marrow Donation
Learn the facts about
bone marrow donation to make an informed decision about joining the
National Marrow Donor Program Registry.
MYTH: Bone marrow
donation is painful.
FACT: Bone marrow donation procedures
are done under general or regional anesthesia so the donor
experiences no pain during the collection procedure.
MYTH:
Pieces of bone are removed from the donor.
FACT: Bone marrow
donation involves transplant of the liquid marrow found inside of
the bone. No pieces of bone are removed from the donor. During a
surgical procedure in an operating room, special, hollow needles are
used to withdraw liquid marrow from the donor’s pelvic bones.
MYTH: No anesthesia is used for bone marrow
donation.
FACT: Bone marrow donation procedures are always
done when the donor is under general or regional anesthesia.
MYTH: All bone marrow donations involve
surgery.
FACT: Some donations involve surgery and some do
not. Donors may be asked to donate marrow, which is a surgical
procedure, or peripheral blood stem cells. PBSC donation is a
non-surgical procedure done in a blood center or outpatient clinic.
PBSC donation involves removing a donor’s blood through a sterile
needle in one arm. The blood is passed through a machine that
separates out the cells used in transplantation. The remaining blood
is returned through the other arm.
The patient’s doctor will
decide what type of donation is best for the patient.
MYTH:
Bone marrow donation involves a lengthy recovery
process.
FACT: Marrow donors can expect to feel some soreness
in their lower back for a few days or longer. Donors also have
reported feeling tired and having some discomfort walking. Most
donors are back to their usual routine in a few days. Some may take
a few weeks before they feel completely recovered. PBSC donors
report varying symptoms including headache, bone or muscle pain,
nausea, insomnia and fatigue. These effects disappear shortly after
donating.
MYTH: Bone marrow donation weakens the
donor.
FACT: A donor’s marrow is completely replaced within
four to six weeks. After donating, most donors are back to their
usual routine in a few days.
Source: National Marrow Donor Program Web
site, http://www.marrow.org/ | |
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